Family Organizes 5K for Neuropathy ResearchApril 16, 2012
On Sunday, May 20, the first Run or Walk With Mike 5K will be held in Stamford, CT to raise funds and awareness for research into a rare neurological condition that can cause progressive weakness, numbness, and loss of balance.
In 2010, 16-year-old Michael Rothman began to limp and had trouble performing simple tasks like opening a bottle. He was soon diagnosed with chronic inflammatory demyelinating polyneuropathy (CIDP), which involves nerve swelling and irritation and can lead to permanent nerve function loss, leading some to become dependent on wheelchairs.
“All of a sudden I had to worry about a disease that I didn’t fully understand,” says Rothman. Before the onset of his illness, he was a typical teenager whose “main concerns were getting my driver’s license and making it to as many Yankee games as I could before the school year started.” Rothman, however, was fortunate to seek help early. Many people with CIDP are not diagnosed until they lose the ability to walk.
To show his gratitude to his physicians at Columbia University Medical Center where he remains a patient, Rothman and his parents established the Michael D. Rothman CIDP Research Fund at Columbia to support further research into neuropathy. Under the direction of Drs. Thomas Brannagan and Louis Weimer, the Columbia Neuropathy Research Center (CNRC) is focused on understanding the causes of and finding effective treatment for neuropathies of all types. CNRC is one of only 15 Neuropathy Centers of Excellence in the U.S. designated by the Neuropathy Association.
The Run or Walk With Mike 5K begins at 9:30 a.m. The event will feature food, music, massages, and other entertainment. The race is organized by Rothman and his sisters, Rachel and Hillary.
To learn more about how you can help advance neuropathy research, and how to join the Run or Walk With Mike 5K, visit www.michaelcidp.com/mike5K.html.